What’s harder than riding your bike 149 miles through the hills and mountains of Massachusetts, New Hampshire, and Vermont in a single day? For our family it was being told your vivacious, loving, and innocent 4 year old has Type 1 diabetes. In November of 2016 our suspicions were confirmed and our fears were validated: Phoebe’s recent insatiable appetite and thirst coupled with alarming fatigue were due to her acquiring Type 1 diabetes, an autoimmune disorder in which your body attacks a specific portion of your pancreas and destroys its ability to produce insulin. Type 1 diabetes is a lifelong condition that is not caused by obesity, diet, or other lifestyle factors. It is a random occurrence that strikes without warning and is often completely unrelated to any hereditary factors (as in our case). It requires constant vigilance in regards to insulin dosing, blood glucose monitoring, and carbohydrate ingestion, particularly for a young child with a sweet tooth! Until Phoebe is old enough to carefully manage all of these responsibilities herself we are her 24/7/365 pancreas.
Thankfully incredible technologies and medications exist that help make this disease more manageable, however both acute and chronic health implications remain for those afflicted, which is why our family has become so passionate about finding a CURE for Type 1 diabetes.
While there are many worthy and exemplary organizations on the national level that help fund research for treatments and a potential cure for diabetes, supporting Type One is important to us as a local organization that supports specific research at Massachusetts General Hospital under the direction of Dr. Denise Faustman who is investigating the use of vaccine therapies, some of which are currently in Phase II clinical trials.
We hope that, with your help and support, children like Phoebe can be helped, or even cured, with the work being done right here in Boston.
Phoebe, and our family, thank you!